Plan your Abilities Expo experience today
Friday, May 4, 2018
10:00am – 2:00pm
The Application of Power Seating Functions: Beyond the Basics
Presented by: Jay Doherty, OTR, ATP/SMS
Location: Jr. Ballroom
This course will examine the coverage criteria, clinical benefits and research in support of the various power seating functions, provide the clinician with practical tools to consider and incorporate when evaluating and documenting the need for power seat options; and assist the supplier in reading and interpreting the information in the medical record to determine when to provide power tilt, power recline, a combination of tilt and recline; when power ELRs or a power AFP is medically necessary and what is required for power seat elevation to be considered a covered benefit. The course will include case studies and a hands-on component for participants to assess the various power seat functions. Registration is required.
11:45am – 12:45pm
How Research Can Improve Quality of Life in Persons with SCI
Presented by: Steve Knezevic, MS, Health Science Technician and Clinical Research Coordinator, James J Peters VA Medical Center
Discover how ongoing research is working to improve quality of life and increase longevity for persons with spinal cord injury. The Spinal Cord Damage Research Center focuses on identifying, preventing, and treating the secondary medical complications of paralysis. Learn about some of their investigations and what they could mean for you, including:
- utilizing paired magnetic and electrical stimulation for the improvement of hand dexterity,
- powered exoskeletons for ambulation, - and medications such as Denosomab for bone density. Their work is helping people with SCI nationwide through initiatives such as the powered exoskeleton programs at VA Medical Centers. They will also discuss how their strong affiliations with other institutions, including Kessler Institute for Rehabilitation, Kessler Foundation, Mount Sinai School of Medicine, and West Point, Columbia University Medical Center, help them accomplish their mission.
Learn more: www.scirc.org
1:00pm – 2:00pm
Open Your World With Accessible Travel
Presented by: John Morris, Founder, WheelchairTravel.org
The world is more accessible than ever, and the travel industry is beginning to recognize that wheelchair users and people with disabilities want to explore it too! This workshop will provide you with information and tools to plan an accessible vacation, opening your world to new experiences and possibilities. Come prepared to participate in an accessible travel Q&A with the presenter, who will bring firsthand knowledge from nearly one million miles flown with a wheelchair. You will leave this workshop with inspiration for your next vacation and tips to make accessible travel enjoyable for all, including your friends, family members and caregivers.
Learn more: Read about traveling with a disability at www.wheelchairtravel.org
2:30pm – 3:30pm
How Medical Cannabis Can Help People with Disabilities
Presented by: Jahan Marcu, Ph.D., Chief Science Officer and Director, Patient Focused Certification Program, Americans for Safe Access
New York and New Jersey have well-established medical cannabis programs, but there is a lot to do in both states to ensure safe access to this important medicine for people with disabilities. Join us to learn more about medical cannabis and how it can be an option for a variety of conditions and symptoms. Discover how you can access medical cannabis where you live. This workshop is designed to be interactive and will include time for questions and answers.
Learn more: www.safeaccessnow.org, www.safeaccessnow.org/conditions
3:45pm – 4:45pm
Maximizing Wellbeing Through Self-Care
Presented by: Regina Rosenthal, PT, MA, Author, The Heart of Healing: Discovering the Secrets of Self-Care, Advanced Certified Process Acupressure Practitioner and Instructor
Recent research highlights the power of our positive (or negative) mindset on our health and wellness. Discover concrete ways to bring this approach to your own life. This session will examine using an Awareness Journal, breath and movement practices, acupressure, and the importance of bringing activities we enjoy into our lives. The presenter's master's degree thesis research found reduced depression and improved self-confidence among those in a chronic pain self-help program using these strategies.
Learn more: www.reginarosenthal.com, www.soullightening.com
Saturday, May 5, 2018
11:45am – 12:45pm
Accessible Home Design: The Basics
Presented by: Rachel Y. Krishnan, AIA, Architectural Project Manager, Paralyzed Veterans of America
Can I retrofit my master bathroom to include a spacious roll-in shower? What must I do to install an elevator in my two-story home? How can my flower garden be made more accessible? Who should I hire to make sure my home renovation project will fit my needs? Accessible Home Design: The Basics will address improving the accessibility in each specific area of a home, as well as what you need to know before taking on a renovation project. Whether it's a new accessible residence or retrofitting your existing home, information will be presented with real examples and case studies. Subject matter will include entering your home; residential elevators and lifts, kitchen design, bathrooms and plumbing fixtures, doors, windows, outdoor areas and gardens, and much more.
Learn more: www.pva.org
1:00pm – 2:00pm
Dealing With Practical Issues Due to Spinal Cord Injury or Paralysis
Presented by: Nurse Linda PhD, CRRN (Linda M. Schultz, PhD, CRRN)
The following workshop is presented by the Christopher and Dana Reeve Foundation and is geared toward anyone who lives with paralysis from disease, injury or birth condition and their loved ones. Learn more at www.christopherreeve.org
Immobility due to paralysis or limited function can affect every aspect of living. Discussing practical adaptations to daily living and personal care can help reduce restrictions and complications as well as to improve overall health. The session will open with specific activities to avoid the complications of immobility from paralysis. The emphasis of the session is about ways to improve health and deal with common problems using readily available resources and how to request additional support. A professional rehabilitation registered nurse will discuss your individual questions about mobility, bowel and bladder function, skin care, wellness and other healthcare issues. This will include ways to improve complications of aging with paralysis. Nurse Linda writes a weekly blog for the Christopher and Dana Reeve Paralysis Foundation. Her discussions are based on current research evidence and guidelines that are translated into easy to understand language. Questions from the audience are welcome.
Learn more: www.christopherreeve.org
2:00pm - 3:00 pm
What You Need to Know about Permobil Power Wheelchairs and Options
Presented by Permobil
Meeting Room 1
For more than a half century, Permobil has been helping people with disabilities achieve greater. Join them for a consumer-focused session and learn how their powerchairs and options can help increase your independence.
2:30pm – 3:30pm
Hyperbaric Oxygen Therapy 101
Shannon Kenitz, Executive Director, International Hyperbarics Association and Giuseppina Benincasa-Feingold, MD
At this session attendees will learn basic information about hyperbaric oxygen therapy, what it is, how it can help, and how to access this treatment. Extensive research supports that HBOT can benefit numerous conditions including: cerebral palsy, stroke, multiple sclerosis, diabetes, cancer, chronic inflammation, spinal cord injury, sports-related injuries, Autism and more. While this therapy is a standard of care in some developed nations, its use in the United States is sporadic. This session will discuss FDA approved uses as well as additional uses to be considered. Hear from Shannon Kenitz who will share her own personal story about how HBOT saved her special needs daughter's life (Grace has a rare mitochondrial condition). A physician co-presenter will detail key research findings, what individuals can expect from treatments, and will answer questions from the audience.
Find resources, research links, and learn more: www.ihausa.org and www.shannonandgrace.com
3:45pm – 4:45pm
First Look at the Film Take a Look At This Heart
Presented by: Ben Duffy, Producer and Director, and Daniel Garcia, Executive Producer
Abilities Expo is pleased to present you with this first look at the new film Take a Look At This Heart, a documentary that explores love and relationships among people who happen to be disabled. We'll treat you to 30 minutes from the film. Then it's time to join in the discussion with filmmakers Ben Duffy and Daniel Garcia, as well as Chelsie Hill, one of the individuals the film followed. Follow us @abilitiesexpo in the weeks prior to the show and let us know what you think of the trailer, what you want to know from the filmmakers, and what your thoughts on what you think we should be talking about when it comes to love and relationships and disability.
Sunday, May 6, 2018
11:45am – 12:45pm
How to Select the Right Accessible Vehicle for You
Presented by: BraunAbility
Does the process of purchasing adaptive equipment for a vehicle leave you feeling challenged and frustrated? Consumers and related healthcare professionals alike are invited to join us to learn the tips to successfully navigating the purchase of vans and accessible modifications. This workshop will cover such topics as what solutions are available and where to find them, key terminology, the shopping and evaluation process, funding options and much more. Following the session attendees are invited for a hands-on van demo at BraunAbility's Booth #1001.
Learn more: www.nmeda.com
1:00pm – 2:00pm
Intensive Pediatric Physical Therapy 101
Presented by: Melissa McGinnis, PT, MPT, Senior Pediatric Intensive PT, Euro-Peds National Center for Intensive Pediatric PT
Intensive Pediatric Physical Therapy for children and young adults who have gross motor disorders is inspired by Eastern Europe's methods and varies from traditional physical therapy. This workshop will present an overview of intensive therapy, its concepts and techniques, primary and secondary benefits, how it varies from traditional and school PT, and current research. Children who benefit from this type of therapy include those with cerebral palsy, Down syndrome, traumatic brain injuries, and other neuromuscular disorders. The primary goal and benefit of the therapy is to teach new and lasting functional physical skills. The presentation will include video footage of this model of therapy and how it creates better outcomes for children at several levels.
Learn more: www.europeds.org
2:30pm – 3:30pm
Financing Assistive Technology through the ABLE Act
Presented by: Curtis D. Edmonds, J.D., Consultant, National Disability Institute
The ABLE Act allows people with disabilities and their families to open savings accounts, which can be used to pay for expenses related to disabilities. The ABLE Act allows money to grow tax-free, and money in ABLE accounts does not count as an asset under SSI and Medicaid (up to $100,000). Saving money in an ABLE account is a great way to save money for assistive technology devices. An ABLE Account will provide more choice and control for the beneficiary and family. The cost of establishing an ABLE account will likely be considerably less than a Special Needs Trust. For more information about ABLE accounts, visit the ABLE National Resource Center website at http://www.ablenrc.org/. The ABLE National Resource Center is a collaborative managed by the National Disability Institute (NDI). Learn more: www.ablenrc.org