Research Matters: UTI Survey Invitation

By Elizabeth Davis, National Rehabilitation Hospital

Individuals with a neurogenic bladder (NB) due to a spinal cord injury (SCI) or other neurological conditions (multiple sclerosis (MS), spina bifida, etc.) are frequently at risk for developing a urinary tract infection (UTI).  And, unfortunately, effectively diagnosing UTIs is a persistent problem for individuals with NB as many of the methods for diagnosing UTIs in the able-bodied community have limited usefulness.  The research team at MedStar National Rehabilitation Hospital in Washington, DC is working to develop better diagnostic tools and would like your input by participating in the below surveys on urinary symptoms. 

UTI Survey

Your Feedback is Needed to Better Diagnose UTIs

Using a patient-centered research model and "consumer experts" (individuals with NB or a caregiver), the research team conducted focus groups to see what individuals that live with neurogenic bladders reported as UTI symptoms. The below surveys will test the validity of the focus group symptoms and also give us information about the frequency, severity and impact of urinary symptoms. We hope that these surveys will ultimately provide a reliable method to help individuals with NB and their caregivers diagnose, manage and treat urinary symptoms.

If you have a spinal cord injury (SCI) AND use indwelling catheterization for bladder management, please take this survey:

If you have a spinal cord injury (SCI) or Multiple Sclerosis (MS) AND are able to void without using a catheter most of the time, please take this survey:

If you have any questions regarding participation in the surveys, please contact Inger Ljungberg at or 202 877-1694.

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